
Mast Cell Action is led by a dedicated team of people who share a commitment to improving the lives of everyone affected by MCAS.
Our Trustees provide strategic oversight, governance and guidance, helping to ensure that the charity is well run, sustainable and always focused on the needs of our community. They bring a wide range of professional expertise, skills and lived experience to their roles.
Working alongside them, our team is responsible for turning our ambitions into action – developing our services, supporting our community, building partnerships and driving forward our work to improve understanding, recognition and support for MCAS.
Most of us have direct experience of MCAS, either someone living with MCAS, through a family member or through a friend. Though our stories are each unique, they share the common thread of the difficulties and frustrations that accompany learning to cope with chronic illness, searching for a diagnosis, and struggling to receive treatment.
Together, our Trustees and leadership team are helping to shape the future of Mast Cell Action and create lasting change for people affected by MCAS.
Chris is a Mast Cell Action trustee and says "The complete vacuum of understanding and support within the medical system convinced me something needed to be done, so when I was approached by Gawain and Jennie, I was happy to join them in founding Mast Cell Action.
My background is one of branding, design and communications so I was able to help in the initial stages of sorting a name, branding, website and so on. I was subsequently volunteered to raise some money which led to undertaking two walks of the Thames along with 15 different dogs (another story!)". You can read more about Chris here.
You can contact Chris at Chris@MastCellAction.org
Eric is a trustee and his background spans military service, business, sports and he is an author. Key to his skill set, is extensive charity experience, having worked in the voluntary sector for over 30 years and being a Fellow of the Chartered Institute of Fundraising.
You can read more about Eric here.
You can contact Eric at eric@mastcellaction.org
Claire Bounds, (BA Psychology, PgDip HR, MSc HR, Assoc CIPD) is a Trustee at Mast Cell Action. Claire has volunteered with us for many years, overseeing recruitment, policies and procedures, and exit procedures.
Among other tasks, Claire also supports with health and safety, and is our safeguarding lead. You can read more about Claire here.
You can contact Claire at claire@MastCellAction.org
Tom is a trustee with a background in healthcare leadership, having served as a Non-Executive Director on the Board of NICE. He brings expertise in medical research development and a strong interest in improving diagnosis and treatment pathways for complex conditions.
You can read more about Tom, here.
You can contact Tom at Tom@mastcellaction.org
Joy is the CEO and leads the day to day running of our charity. Joy has MCAS and cares for 2 children with MCAS. Having worked in various charities for the past decade, she has extensive experience which she brings to the team.
Her personal experience with MCAS provides her with a deep understanding and empathy for those we aim to help, ensuring our initiatives are both relevant and impactful. You can read more about Joy's experiences with MCAS and her work here.
You can contact Joy at Joy@MastCellAction.org.
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Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.