Volunteer at Mast Cell Action

If you are interested in supporting Mast Cell Action through volunteering, we have opportunities in communications, our patient support programmes, medical research/liaison, and operations management. 

Some of our volunteers have a vested interest in the disease (i.e. they or they know someone who suffers from the syndrome), others just want to provide their expertise and skills to the charity in order to give back to the community.

Why volunteer?

Volunteering can help you develop new skills and gain valuable experience. By volunteering, you can gain hands-on experience in a variety of areas, such as event planning, marketing, and leadership.

These skills can be valuable in both personal and professional settings and can help you to stand out in the job market. Additionally, volunteering can provide opportunities for personal growth, such as improving your communication skills or developing your empathy and compassion.

Volunteering can help you build relationships and expand your network, allowing you to meet new people who share similar interests and values.

It can also provide a sense of purpose and fulfilment. By helping others, you can make a positive impact on your community and contribute to a cause that you are passionate about. This can help to improve your overall well-being. 

You can view our current vacancies here. Please contact us for further information or to have a chat about how you would like to work with Mast Cell Action. 

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We are always open to welcoming new people with different skills who would like to support those affected by Mast Cell Activation Syndrome. If you are interested in volunteering for Mast Cell Action, please get in touch.  

Upcoming vacancies will be posted on the following websites - 

Do It

Volunteer Match

Charity Jobs

Reach

Open University Job Portal

We would love to hear from you if you are interested in any of our current vacancies or if you have something else in mind! 

Katrin, a Mast Cell Action volunteer, shares her volunteering story:

"I joined the Mast Cell Action team at the end of 2021. With my children getting older, I found myself with a little more time on my hands and a desire to learn some new skills as well as to put my existing experience and skills to a good cause. I have a PhD in cell and molecular biology, and so am intrinsically interested in MCAS, but my daughter also shows some of the signs and symptoms (thankfully not severe) of MCAS, so I also have a vested interest in finding out more about this disease.

My background is in science editing and writing, but I am keen to extend my communication skillset to include pictures as well as words! In my role as Communications and Marketing Volunteer for Mast Cell Action, I help to develop graphics for the charity’s social media sites and any campaigns it embarks upon.

Although I was familiar with creating simple graphics for use on social media through another voluntary role at my daughter’s football club, Joy has helped me to cement these existing skills as well as teaching me (enthusiastically and very patiently!) new ones and involving me in other aspects of the charity’s work.  Even though I spend only a few hours per week working for Mast Cell Action, I feel that this work is valued and that I am making a worthwhile contribution to the charity. In the meantime, I’ve gained confidence, new skills, and more knowledge about MCAS!".

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I found Mast Cell Action through researching my own symptoms and it was the first time I read someone’s story and thought ‘that sounds like me’. I love to write and find it a great way of coping with life. I started posting little comments and poems on the Mast Cell Action Facebook pages. Joy (Head of Communications and Operations) got in touch with me to ask if they would be able to share some of my writing as it helps other people to understand ‘how MCAS feels’. From there, I’ve written various pieces and also developed the ‘MCAS Moments’ campaign where we share moments of everyday life and how different they are when you have MCAS.

I really want people to feel like they have support, that there are others who understand what they’re going through and to try and ‘give a voice to how it feels’ to have this condition so that other people understand.

Katya has a background of several years in the film production industry as a project manager and editor with a specific focus on charity campaign films.

Whilst managing MCAS symptoms herself, she’s created her own accessible business from home to avoid triggers, as a food photographer and videographer and recipe developer specifically for elimination / restrictive diets.

She also shares her strategies for managing life and travelling with several chronic illnesses across @positivelychronictravels instagram and website with several free resources and advocacy.

To continue her advocacy and raise more awareness and help generate change in the community for MCAS, Katya is also now our Community Champion volunteer. 

When my brother became ill with Mast Cell Activation Syndrome (following tick bites which caused alpha-gal allergy and anaphylaxis), it quickly became clear that awareness and understanding of Mast Cell Activation Syndrome are in short supply. Unfortunately, the NHS was unable to diagnose or treat my brother and, time and again, doctors refused to entertain the notion of MCAS - preferring to dismiss his severe allergy-type symptoms as anxiety. 

Thanks to Mast Cell Action and the caring community of people who share their knowledge and experiences of MCAS, my brother is finding ways to navigate this complex condition. I'm grateful for the validation, understanding, solidarity, support and hope offered by this community. I'm determined to keep learning about MCAS and raising awareness of its effects, so sufferers can get the support they need to regain their health and lives. 

As part of my volunteer role, I'll be supporting Mast Cell Action's Thursday evening Zoom sessions. 

Mast Cell Action volunteer, Jasmine, shares her volunteering story:

"Hello! My name is Jasmine Maria Cutajar, a recent addition to the social media department at Mast Cell Action. Apart from my role here at Mast Cell Action, I am also a full-time Master’s student at Cardiff University where I am finishing my studies in media and politics. Moving away from my native country of Malta during the pandemic has been quite challenging with lockdowns and restrictions. Last October I found myself alone and in a new city unsure of what to do next alongside my studies and away from university life. I have never been one to shy away from a challenge, however, the pandemic added a layer of uncertainty in my plans of socialisation in my new home.

As a final year student, I felt unsure on what comes next for me and decided that volunteering would be a great way of discovering what I want to do next when it came to my career. Whilst my role in the social media department is something new to me, I am grateful for the trust entrusted in me by both Joy and Claire. My prior knowledge in social media came from spending hours reading, watching YouTube videos and growing up in an era filled with social media. I also run my own personal account which is something I’ve grown over the past 6 years and have learnt a lot of tricks that I now use in this role. With Joy’s supervision I have been able to learn new techniques and methods in creating new content which is now being posted on all of MCAS social media platforms. Whilst this is my second time volunteering, I believe that it would be a missed opportunity for anyone to not offer their knowledge to organisations such as Mast Cell Action and help bring awareness to a worthwhile cause. Volunteering for Mast Cell Action has taught me skills which I am hoping will help me figure out what is the best career for me to follow once I am done with my studies."

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Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.

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