About Mast Cell Action
Mast Cell Action is the UK charity dedicated to improving the lives of people affected by Mast Cell Activation Syndrome (MCAS). We work to ensure that people with MCAS are better understood, better supported and able to access the healthcare they need. We provide trusted information and practical support, educate healthcare professionals, raise awareness, and work to improve understanding, diagnosis and treatment of MCAS.
Everything we do is shaped by people with lived experience of MCAS and informed by healthcare professionals and other experts.
Our Mission
Our mission is to transform the lives of people affected by Mast Cell Activation Syndrome through better healthcare, medical breakthroughs, and a stronger, supported community.
Our Vision
A world where everyone with MCAS gets the diagnosis, treatment and care they need.
What We Do
We are working to create lasting change for people affected by MCAS - so that everyone can access the understanding, support and healthcare they need to live as well as possible. That means being there for people who need help today, while also tackling the wider challenges that need to change for the future. We provide trusted information and practical support, help healthcare professionals build their knowledge and confidence, raise awareness and understanding of MCAS, and work to strengthen the evidence and recognition surrounding the condition. By bringing together people with lived experience, healthcare professionals, researchers and other organisations, we aim to turn greater understanding of MCAS into meaningful improvements in diagnosis, treatment, care and quality of life.
From one-to-one support and community events to clinical resources, professional education and national advocacy, our work is helping to change what it means to live with MCAS.
Our Work
Our work brings together practical support for people living with MCAS with the wider change needed to improve their lives for the future. From trusted information, resources and peer support to healthcare professional education, research and advocacy, we work across the areas where change is most needed.
Support people affected by MCAS
We provide trusted information, practical resources, online events, peer support and opportunities to connect with others who understand life with MCAS.
Improve healthcare
We work with healthcare professionals to improve awareness, knowledge and confidence around MCAS, developing evidence-informed clinical resources, education and training.
Advance understanding
We bring together those affected, clinicians, researchers and other organisations to strengthen understanding of MCAS, identify gaps in knowledge and help drive improvements in research, diagnosis and treatment.
Make the MCAS community heard
People affected by MCAS are at the heart of our work. We listen to their experiences, identify the issues that matter most and make sure their voices are represented in our work with healthcare, researchers, policymakers and other organisations.
"The complete vacuum of understanding and support within the medical system convinced me something needed to be done, so when I was approached by Gawain and Jennie, I was happy to join them in founding Mast Cell Action. My background is one of branding, design and communications so I was able to help in the initial stages of sorting a name, branding, website and so on. I was subsequently volunteered to raise some money which led to undertaking two walks of the Thames along with 15 different dogs (another story!)" Chris Wood, Trustee
Become a friend
Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives.
Donate
Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.
