Get involved

If you haven’t already registered to become a Friend of Mast Cell Action you can do so by using the link at the bottom of the page.

With your help Mast Cell Action aims to ensure that doctors across the UK have a greater awareness of this debilitating illness and will work to promote the development of more accurate tests leading to much quicker diagnosis and treatment.

We promise that every penny we raise will go towards achieving our aims. If you haven’t already done so please donate using the link below.

Other ways of getting involved would be to get in touch about the following issues:

  • We would like to add more patient stories to our web content, so if you feel able to share yours, please sent it to us with your consent for us to add it to our website.
  • If you feel you have something to offer that can contribute towards making a better life for MCAS patients, we would like to hear your ideas.
  • We are aiming to build a comprehensive list of doctors who understand MCAS. If you would like to suggest a doctor to add to this list, please let us know in confidence: We are happy to approach them and discuss to what extent they may want to get involved In helping MCAS patients.

     

Contact Us

Thank you for reaching out to Mast Cell Action.
We are a small Volunteer-run, UK Charity. Whilst we aim to help as many people as possible, being based from home has meant, we have had to prioritise enquiries from those people residing in the UK. Emails will be answered as soon as possible Monday to Friday.

Please read below the different contact emails available dependent on your specific enquiry. Please remember to check your Spam/Junk mail folders for replies.

If you are from the UK enquiring about Mast Cell Disorders and their symptoms, diagnosis or consultant suggestions please email info@mastcellaction.org with the following:

Your symptoms

Location in the UK

Ability to travel outside of your immediate area

Are you looking for an NHS or private consultant suggestion?

Does your enquiry relate to Long Covid?


For all other enquires please be specific about the information you require.

If you are from the UK and are a medical professional or researcher please email medicalliaison@mastcellaction.org  

If you are from the UK and would like to get involved with fundraising for Mast Cell Action, please email fundraising@mastcellaction.org    

If you are from the UK and enquiring about being a volunteer for Mast Cell Action, please email volunteer@mastcellaction.org

If you wish to share your patient story with Mast Cell Action, please email patientstory@mastcellaction.org

 

We are unable to answer all the enquiries we receive from patients and Doctors outside of the UK.  

If you reside in America, 

Thank you for reaching out to Mast Cell Action.

Unfortunately, none of our volunteers have a working knowledge of the US medical system. However, the following websites may be of help.  

The Mast Cell Disease Society Inc; https://tmsforacure.org

Dr Afrin; http://www.armonkmed.com/about/dr-afrin/

Dr Demsey; https://www.drtaniadempsey.com

Dr Theoharides; https://www.mastcellmaster.com

Facebook support groups:  Mastattack

    Mast Cell (“Activation”) Disorders Forum

    MCAD (Mast Cell Activation Disorder) & Related Conditions

We hope this is of help and wish you the best in your health journey.

If you reside in Europe please look at this link:

Thank you for reaching out to Mast Cell Action.

Unfortunately, none of our volunteers have a working knowledge of the European countries medical systems. However, the following websites may be of help.  

The Mastocytosis and Mast cell Diseases Awareness Day: https://mastocytosis-mcas.org

Mastzellaktivierung.info: https://www.mastzellaktivierung.info/en/self-helpgroups.html

Netherlands: www.mastocytose.nl and email info@mastocytose.nl

We hope this is of help and wish you the best in your health journey.

If you are from Australasia please look at this link

Unfortunately, none of our volunteers have a working knowledge of the Australasian medical systems. However, the following websites may be of help.  

The Australasian Mastocytosis Society: https://mastocytosis.org.au

Facebook:vMastocytosis Australasia

Mast Cell Action (Registered Charity 1164917) is compliant with UK’s General Data Protection Regulation (GDPR). Your data will be compliant with Article 5 of GDPR regulations,  https://ico.org.uk/for-organisations/guide-to-the-general-data-protection-regulation-gdpr/).  Your personal data will be kept for no longer than necessary and will be stored securely.

You have the following rights about your personal data:

    • The right to be informed
    • The right of access
    • The right to rectification
    • The right to erase
    • The right to restrict processing
    • The right to data portability
    • The right to object (including objecting to direct marketing)
    • Rights in relation to automated decision making and profiling. 

For more information on individual rights go to  https://ico.org.uk/for-organisations/guide-to-the-general-data-protection-regulation-gdpr/ individual-rights/.

Get in touch

This form is no longer working, please do not fill in but refer to email addresses above.

If we can help you, patient or doctor, or if you feel you can help us, we would very much like to hear from you.

We would also welcome any suggestions you might have for fulfilling our mission and improving our website. No idea is too small! 

Become a friend

Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives. Please click on Data Protection at the bottom of the page to see our Data Protection Information.

Become a friend

Donate

Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference for sufferers of MCAS.

Make a donation