Image: Get involved

Community survey

Calling all MCAS warriors! Your voice matters! 

Mast Cell Action is committed to empowering and supporting the MCAS community, and we need your valuable input to make a difference. 

Complete our Community Survey and let your voice be heard! Share your experiences, challenges, and suggestions to help us understand your needs better. Your feedback will shape our future initiatives and advocacy efforts. Together, we can drive change and improve the lives of individuals with MCAS. The more voices we have, the stronger our impact will be! 

Access the survey here. Deadline: 1st September 2023

Become a Friend

Friends of Mast Cell Action receive regular newsletters with highlights of upcoming plans, what we have been doing and how you can help to support people affected by MCAS.

Our newsletters are usually sent monthly and often include information about conferences and webinars we have attended, projects we are working on and resources we hope to develop. They also include fundraising updates and opportunities for you to get involved - such as volunteering or supporting ongoing projects.

If you are interested in becoming a Friend and have not yet signed up, you can register here.

Share your story

Sharing your story can help people affected by MCAS in several ways.

People affected by MCAS often report feeling isolated and alone. Sharing your story for others to read can help them to feel more connected and to see that there are others out there like them.

Your story could be shared with Healthcare Professionals to help demonstrate the experiences of those living with MCAS throughout their diagnostic journey. These are very powerful in helping to demonstrate the need for joined-up care and medical support which is currently lacking.

If you would like to talk to us about sharing your story, please get in touch.


We have many plans to support those living with MCAS and with your support we can do so much more! Every pound you raise will help us to support the mast cell disease community, their families, doctors and researchers. To raise awareness of disorders resulting from mast cell activation, increase vital research in this area and strive for better diagnostics and treatment. Your donation will help us to develop resources and support to help many individuals in our community.

By fundraising for Mast Cell Action, you will be supporting us to help improve the lives of everyone affected by MCAS. 

If you are interested in fundraising for Mast Cell Action, you can find inspiration and other fundraiser stories here. Please get in touch if you would like to discuss your fundraising idea with us.


Mast Cell Action relies on volunteers to support many of the services and projects we deliver. Without our amazing team of dedicated supporters, we wouldn't be able to do so much for those affected by MCAS.

If you have some spare time you could use to help Mast Cell Action to make a difference for people living with mast cell disease, please do get in touch to discuss how you might be able to help.

Check out our volunteering section for more info. 

Raise awareness

Mast Cell Action is working to raise awareness of Mast Cell Diseases.

We are always keen to support presentations, webinars and conferences that help to raise awareness of MCAS. If you are interested in holding an event or want us to present about MCAS. Please get in touch to discuss how we might be able to help. If you would like to support our awareness raising campaigns we would love to hear from you! Please contact us for more information.

Each October sees the annual Mastocytosis and Mast Cell Disease Awareness Day. We hope to encourage famous landmarks to light up in purple in recognition of the day and to help raise awareness about MCAS and other Mast Cell Diseases. If you would like to get involved or are can help to spread the word and ask famous landmarks to join in, please get in touch

Please remember that we are a small team and although we will endeavour to contact you as soon as possible, there may be times where our response time is longer than we would like. We apologise if there is a delay and thank you for your patience.

Become a friend

Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives. 

Become a friend


Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.

Make a donation