We have developed multiple resources to support people affected by MCAS and those caring for people with MCAS.
Some of our resources are for children and families, others are for adults. Use the tabs at the bottom of this page to find the right resources for you.
After nearly 18 months of work, our Freedom Kit is finally ready to share!
This kit is a resource for families to use to share information with schools in order to help create a plan for children with MCAS in education settings. The kit has information about MCAS and spaces to record information about your child or the child you care for with MCAS to make it easier to share this with education and childcare settings.
We would love to hear your feedback about this resource.
Download the full pack here!
Our parent support leaflet has developed to help support parents and carers of children living with systemic mast cell activation and Mast Cell Activation Syndrome (MCAS).
It provides suggestions for how to care for your personal mental wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.
In this leaflet, we hope to share ideas and suggestions that support a positive way of thinking and approaching a new way of family life, whilst accepting the challenges that may lay ahead.
Download our newly launched parent support leaflet here
We are delighted to have published a children's book, Casper the Chameleon. Written by our very own Director of Operations, Joy Mason.
Order your copy for free by emailing denise@mastcellaction.org.
We hope the following resources will be used in partnership with the book to support wellbeing in the MCAS community.
Read more about Casper and how to get your FREE copy here.
This information guide about MCAS, and the additional needs a student with MCAS may have, can be shared with Disability Officers and other members of staff at universities.
31.07.2023This resource has been designed to provide general guidance and help students to access support as they approach further education at university.
19.07.2023This PDF combines our freedom kit, MCAS for teachers pack and letter for schools in one handy download.
29.06.2023The resource pack to help you to share vital information about your child's mast cell disorder with school and other care-givers.
29.06.2023This pack can be used to share information about MCAS with teachers and other care-givers.
29.06.2023Use this letter template along with the Freedom kit to share your child's needs with their school or childcare provider
29.06.2023A form designed to help you to plan the questions you would like to ask and symptoms you would like to discuss at medical appointments.
25.06.2021A short mindfulness practice for those feeling illness or discomfort
04.07.2023A PDF to support our session on mast cells and the mind by Deborah Bircham
04.07.2023When we are feeling worried or scared it can be tricky to find a way to feel better about the things that are bothering us. Download and complete this plan which you can follow when those worries feel overwhelming.
29.06.2023People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.
29.06.2023In the same way that a jigsaw is made up of lots of different pieces, each of us are madeup of lots of different parts too. This puzzle can help you to talk about MCAS being just one part of that puzzle.
24.06.2021An exercise to help children identify the things which make them feel good, those which don't and what helps them to feel better when things aren't going so well.
26.05.2021The ball of worries activity introduces children to a practical coping strategy to make thoughts and worries appear more manageable.
26.05.2021A leaflet designed to help support parents and carers of children living with systemic mast cell activation and MCAS. It provides suggestions for how to care for your personal wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.
25.05.2021An exercise to help you find the activities that make you feel good and may help to improve your mood. Suitable for children and adults.
24.05.2021This worksheet helps you to estimate your personal stress levels and gives you an idea of your current wellbeing.
24.05.2021This is a quick and easy resource designed to help you, and those that care about you, to check-in with how you are doing.
24.05.2021This information guide about MCAS, and the additional needs a student with MCAS may have, can be shared with Disability Officers and other members of staff at universities.
31.07.2023This resource has been designed to provide general guidance and help students to access support as they approach further education at university.
19.07.2023A form designed to help you to plan the questions you would like to ask and symptoms you would like to discuss at medical appointments.
25.06.2021A short mindfulness practice for those feeling illness or discomfort
04.07.2023A PDF to support our session on mast cells and the mind by Deborah Bircham
04.07.2023People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.
29.06.2023This worksheet helps you to estimate your personal stress levels and gives you an idea of your current wellbeing.
24.05.2021This is a quick and easy resource designed to help you, and those that care about you, to check-in with how you are doing.
24.05.2021This toolkit contains information about substances in food and in the environment that can affect mast cell activity or trigger MCAS symptoms. It also includes practical advice to help you understand and avoid these triggers, as needed.
26.06.2023This histamine bucket is a useful visual aid in trying to understand the impact of factors contributing to histamine levels.
18.03.2022SIGHI is an organisation that provides information about histamine-related disorders.
18.03.2022Blogs, books and recipes written by the low histamine chef (Yasmina Ykelenstam), a health journalist who has managed her own histamine intolerance for more than 10 years.
18.03.2022A medication timetable to log daily medications
25.06.2021A medication log blank which you can use to record medications, dosages and medication times in order to keep on track.
26.05.2021Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives.
Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.