Resources

We have developed multiple resources to support people affected by MCAS and those caring for people with MCAS.

Some of our resources are for children and families, others are for adults. Use the tabs at the bottom of this page to find the right resources for you.

Supporting reasonable adjustments in the workplace

We are delighted that are reasonable adjustments support pack is finally ready! From knowing your rights, to informing your employer about MCAS or implementing policies and reasonable adjustments to support you in the workplace, we've got it covered! Download the full pack here.

Please do get in touch to let us know if the pack has helped you!

This work has been made possible by an award from Postcode Places Trust, a grant-giving charity funded entirely by players of People’s Postcode Lottery.

With thanks to Annisha Sidhu and Katya Kozary for making this project possible.

School Freedom Kit

After nearly 18 months of work, our Freedom Kit is finally ready to share!

This kit is a resource for families to use to share information with schools in order to help create a plan for children with MCAS in education settings. The kit has information about MCAS and spaces to record information about your child or the child you care for with MCAS to make it easier to share this with education and childcare settings.

We would love to hear your feedback about this resource.

Download the full pack here!

Parent support leaflet

Our parent support leaflet has developed to help support parents and carers of children living with systemic mast cell activation and Mast Cell Activation Syndrome (MCAS).

It provides suggestions for how to care for your personal mental wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.

In this leaflet, we hope to share ideas and suggestions that support a positive way of thinking and approaching a new way of family life, whilst accepting the challenges that may lay ahead.

Download our newly launched parent support leaflet here

Casper the Chameleon

We are delighted to have published a children's book, Casper the Chameleon. Written by our very own Director of Operations, Joy Mason.

Order your copy for free by emailing denise@mastcellaction.org.

We hope the following resources will be used in partnership with the book to support wellbeing in the MCAS community.

Read more about Casper and how to get your FREE copy here.

"I just wanted to take a moment to say a heartfelt 'thank you' from all our family for your lovely chameleon book and discussion cards. We're in a tough place at the moment where both our sons have crashed with a huge flare-up of their mast cell disorder. And your book was there to help us open the conversation with them about why their bodies are feeling the way they are and to help them find the words and space to tell us how it feels for them."

Wellbeing resources for families

Boom and bust cycle theory for Kids

In the world of chronic illness, it's normal to have good and not-so-good days. But if you do too much on the good days, you can end up needing extra rest on the not-so-good days. It's like a seesaw that goes up and down.

04.10.2023

Progressive muscle relaxation

When we feel worried or are in 'fight, flight or freeze' mode, our muscles can become tight without us even realising it. To help ourselves feel calmer, we can try focusing on each group of muscles in our body.

02.10.2023

Meditation by Deborah Bircham with music shanti by Annie Brunson

A short mindfulness practice for those feeling illness or discomfort

04.07.2023

Mast cells and the mind

A PDF to support our session on mast cells and the mind by Deborah Bircham

04.07.2023

My Feel better plan

When we are feeling worried or scared it can be tricky to find a way to feel better about the things that are bothering us. Download and complete this plan which you can follow when those worries feel overwhelming.

29.06.2023

The Spoon Theory

People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.

29.06.2023

The puzzle of you

In the same way that a jigsaw is made up of lots of different pieces, each of us are madeup of lots of different parts too. This puzzle can help you to talk about MCAS being just one part of that puzzle.

24.06.2021

Your wellbeing bucket

An exercise to help children identify the things which make them feel good, those which don't and what helps them to feel better when things aren't going so well.

26.05.2021

Ball of wool game

The ball of worries activity introduces children to a practical coping strategy to make thoughts and worries appear more manageable.

26.05.2021
Parent support leaflet

Parent support leaflet

A leaflet designed to help support parents and carers of children living with systemic mast cell activation and MCAS. It provides suggestions for how to care for your personal wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.

25.05.2021
An exercise to help you find your feel good activities

Feel good jar

An exercise to help you find the activities that make you feel good and may help to improve your mood. Suitable for children and adults.

24.05.2021
A downloadable worksheet to assess personal stress levels for adults

Perceived stress scale - Adults

This worksheet helps you to estimate your personal stress levels and gives you an idea of your current wellbeing.

24.05.2021
Children's mood check in sheet - printable

Mood check-in sheet - children

This is a quick and easy resource designed to help you, and those that care about you, to check-in with how you are doing.

24.05.2021

Resources for adults

Reasonable adjustments in the workplace full pack

This is our full pack with multiple resources to support requesting reasonable adjustments in the workplace with MCAS.

10.10.2023

Understanding your rights and advocating for yourself in the workplace - a guide for people with MCAS

This guide helps you to understand your rights and the support that could be put into place in your workplace to help you.

10.10.2023

MCAS for employers

This guide for employers explains MCAS and the support that could be put into place in the workplace for those with MCAS.

10.10.2023

An MCAS-friendly workplace - cheat sheet

This cheat sheet has top tips that might be helpful when creating an MCAS-friendly work place.

10.10.2023

Reasonable adjustment passport

A workplace adjustments passport is a live record of all workplace adjustments agreed with your employer.

10.10.2023

Template for requesting reasonable adjustments

This template may be helpful when requesting reasonable adjustments from your employer.

10.10.2023

Reasonable Adjustments Reflection Template.

This table may support you to break down the reasonable adjustments that could be made to support you in your workplace.

10.10.2023

Letter challenging a refusal to make reasonable adjustments

This letter may be useful if you need to challenge a refusal to implement reasonable adjustments in your workplace.

10.10.2023

Reasonable Adjustments Policy Template

This template policy can be shared with your workplace to support the development and implementation of a reasonable adjustment policy.

10.10.2023

MCAS for Disability Officers

This information guide about MCAS, and the additional needs a student with MCAS may have, can be shared with Disability Officers and other members of staff at universities.

31.07.2023

MCAS and higher education

This resource has been designed to provide general guidance and help students to access support as they approach further education at university.

19.07.2023

Doctor visit preparation form

A form designed to help you to plan the questions you would like to ask and symptoms you would like to discuss at medical appointments.

25.06.2021

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