Mast Cell Action would like our guests, friends and those we work with to feel safe and secure in knowing that their personal data will be protected.
To fulfil our promise, Mast Cell Action endeavours to provide utmost transparency in the way in which your data and personal information is collected, used, and stored.
WHO WE ARE
Mast Cell Action provide support, raise awareness, and help advance the diagnosis and treatment of MCAS. Our objective is to build an organisation that gives a voice to patients, supports doctors, and informs policy-makers about this condition
Here at Mast Cell Action, we respect your privacy and pledge to protect your personal information in compliance with the General Data Protection Regulation (GDPR).
You are welcome to access and use our site without disclosing your personal data
HOW WE COLLECT INFORMATION ABOUT YOU
We want to ensure you receive communications most relevant to you, whether you are visiting our website, communicating with us by phone or by post, Mast Cell Action want to provide you with the best quality of care, tailored to you as an individual. To help fulfil our promise, we may collect information from you in some of the following ways:
WHAT PERSONAL DATA MAY BE COLLECTED, USED AND STORED ABOUT OUR MEMBERS?
Personal information we collect may include details such as your name, gender, date of birth, contact details and financial information. We will typically use the following information:
PROCESSING PERSONAL DATA:
Whilst carrying out work/volunteering activities, members and individuals are likely to process personal data. Mast Cell Action will only expect individuals to process personal data where the organisation has a lawful basis to process such information. Examples include:
HOW DO WE USE OR STORE YOUR PERSONAL DATA?
How we use your personal information will depend on how you interact with us. The details below set out how you may interact with Mast Cell Action, and with open transparency, confirms how we are using and storing your personal data.
WHEN WILL MAST CELL ACTION USE YOUR DATA?
During employment/volunteering and also for a short period after a working relationship has ended, Mast Cell Action will use personal information for certain purposes. The list below describes the purpose of our processing and the personal data involved:
WHO DO WE SHARE YOUR PERSONAL DATA WITH?
We hold your information for reference purposes only, this information is not shared with any other individual, entity or organisation without your granted permission
If ever the case arose, the transferring of any data should only ever take place once appropriate safeguarding measures have been put in place, to protect the security of said data
Stories shared with Mast Cell Action will be approved by the individual prior to being distributed. Stories will be shared on multiple platforms including but not limited to Mast Cell Action's website, social media platforms, through newsletters, with doctors and at conferences.
Cookies are widely used to make websites function more efficiently for visitors, and to provide information to the owners of the site
Cookies come in the form of text files and can be stored on your computer, phone or other device, by websites you visit
Cookies do not collect or store personal information about you, rather, they collect information relative to the devices you use to access the internet and your browsing history
When you first visit our website, we may ask for consent to set cookies, it is at this stage you will have the opportunity to set your preferences
You can also withdraw your consent by clearing cookies from the cache in your computer and rejecting them next time you visit our website
KEEPING YOUR INFORMATION SAFE AND HOW LONG WE HOLD YOUR DATA FOR
Here at Mast Cell Action, we take looking after your information very seriously, implementing appropriate technical and organisational measures to protect the personal information we have in our care
Our policies protect against unlawful processing of personal data, accidental loss or destruction of data
Mast Cell Action will only hold your information for as long as reasonably necessary
Any information held will be stored in our secure data management system, which can only be accessed by authorised charity personnel
Mast Cell Action’s policy promotes regular and consistent review of all personal information held, ensuring held data and lawful reasoning is always up to date
You have the right to access, amend or delete your personal information held by us at any time. Please email firstname.lastname@example.org and we will delete or amend any of your records as appropriate
LEGALITIES IN USING YOUR INFORMATION
Mast Cell Action will only use your personal information where we have your consent. However, there may be other lawful requirements for us to process your personal information. If and when doing so, Mast Cell Action is required by law to ensure that any processed data is:
Mast Cell Action strives to ensure that the information provided on our website is accurate at the time of publication, timely, unbiased and useful. We will endeavour to respond to questions in a balanced and informative manner
The information contained on the site and communicated in responses should not be considered medical guidance or professional advice
Your use of this site constitutes acceptance of these terms and conditions
Using any of Mast Cell Actions’ content, logos, graphics or photographs without the charity's prior written consent is strictly prohibited
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Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.