Our Facebook communities

We have two Facebook community support and advice forums for UK residents.

Given the difficulty in obtaining an MCAS diagnosis, these are open to anyone living in the UK with unusual symptoms affecting multiple parts of the body which are consistent with the pattern of MCAS, and for which no alternative diagnosis has been found.

"This group has been an utter lifesaver for me. Less alone is a total understatement, this is a vital life line. Thank you for being there when much in this world makes us feel mislead and unheard."

Please see our information pages on the symptoms of MCAS for further information.

If you are an adult with an MCAS diagnosis or suspect that you have MCAS and are in need of help or advice you can find our adult support group here.

If you are a parent with a child with MCAS or suspected MCAS you can request to join our parents' support group here.

If you are a family member looking for support, you are welcome to also join here.

Please note that if you do not complete the questions when requesting to join we will be unable to add you to the group. This is in order for us to keep the groups a safe space for people who are living with MCAS and to avoid unwanted promotions or spam messages.

"I’ve definitely felt less alone during the past very difficult 3 years. Even though we don’t meet in person, knowing other individuals understand my situation is very important. Thank you "

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