Thanks to you we have achieved so much, but there is still much work to do and we need your continued help to ensure that support and treatment becomes accessible to everyone who needs it.  
 
If you would like to get involved but aren’t sure what you’d like to do, don’t worry, we’re here to help and support you to reach your goal. Contact us by e-mail on info@mastcellaction.org to discuss ideas, options, and resources to help your fundraiser be a big success.   
 
Thank you for being there for our community.  
 
Click here for our fundraising resources. 

I started researching challenges and the first one I stumbled across was Eddie Izzards 27 marathons for sports relief. “27 marathons; 27 tablets; we might have something here” I thought.' 

Why do I want to support MCA? 'The MCA website and research papers have been pivotal in stopping the medical gaslighting and forcing professionals to listen to us.' 

How do I feel about what Megan has been through? 'How does anyone feel when the one that you love becomes critically ill? You just feel thankful to have had what time you have had, the times to come and remain hopeful for a cure or medication that works.' 

How do I feel about supporting someone with MCAS? 'Any illness gives you perspective; our lives have changed drastically. It is trying, exhausting, testing… the list goes on but it also makes some things momentous. A date night becomes an occasion not a routine, a cinema trip without a reaction becomes a win and you understand that in life it doesn’t matter where you are; it’s the people that matter and you do what you can. You make them hot water bottles at 2am, you carry them up the stairs when they can’t walk and you certainly don’t give up on them.' 

"After childbirth, my wife developed sepsis in the uterus; doctor’s think this mutated a gene in my wife’s body, and it changed our life’s. The symptoms started mild - rashes, swelling etc. Due to MCAS spectrum of symptoms, every medical professional had a different opinion of what was going on. 

It took about two years of elimination testing to reach a diagnosis and nearly three to start treatments. The last three years have been unpredictable, reactive and emotional. 

Megan is on numerous treatment pathways but were yet to find one that works; the thing that helps the most are family. 

Severe MCAS puts a new lens on everything that you do. We take each day at a time; we rarely plan but grasp opportunity as it comes. 

MCA has provided direction to alternate specialists, provided resources and emotional support to my wife but also helped me on my fundraising journey by providing the framework and leg up to raise a large portion of money to help the cause". 

You can see Scott's training programme and marathon journey on Instagram, here. 

Check out Scott's Just Giving page and read his and Megan's story, here. 

Follow Scott on Instagram or Twitter for updates. 

Thank you Scott for supporting Mast Cell Action and helping us to raise vital funds and awareness. Megan and all the team here at Mast Cell Action are very proud of your efforts, especially when you crossed that 27th finish line. We can't thank you enough for all that you've done to help. 

"Despite a lack of training, the walking has been going well – the feet may tell another story! Some toenails are missing and blister had multiple blister at the end of the day – but all worth it! To date we have raised over £1,000 this year. Charlotte, our 7 year old daughter, suffers from this condition. It has been a steep learning curve in being diagnosed, recognised and management. Having a support group helps to ask questions but as a community we can help push forward with potential treatments and cures. 

Feeling that you can give back to people in the ultimate aim of trying to raise awareness and a find a cure. I would love to take away Charlottes’ troubles, as a parent that is all you want. However I can’t magic it away so instead choose to channel that into hopefully providing the group with much needed money to help". 

What message would you like to share with the MCAS community? 

We are all in this together – so donate, support, fundraise – it’s the only way to change things. 

What message would you like to share with the wider community? 

"MCAS is an under recognised, under diagnosed and mismanaged condition affecting all aspects of Charlottes’ life. It’s something that needs more funding and research to help improve Charlottes' life along with many other sufferers".