With your help Mast Cell Action aims to ensure that doctors across the UK have a greater awareness of this debilitating illness and will work to promote the development of more accurate and quicker diagnosis and treatment.
Our wellbeing projects have been created to help support people with MCAS and their families. Sharing ways to help look after your physical and mental health, and self management tools and strategies.
We promise that every penny we raise will go towards achieving our aims.
You can donate directly to Mast Cell Action here.
MCA Supporter Scott Fisher is undertaking an incredible feat of doing 27 marathons in 27 days!
Scott's Wife, Megan, lives with many debilitating symptoms caused by MCAS and Scott feels passionate about raising funds for Mast Cell Action to help support those living with MCAS.
The idea. 'Marathons for MAST Cell originally started when I was making up my wife’s medication for the week. As I put 175 tablets into boxes for a week, I thought. This isn’t good enough; someone needs to do something to help people who are going through this. I started researching challenges and the first one I stumbled across was Eddie Izzards 27 marathons for sports relief. “27 marathons; 27 tablets; we might have something here” I thought.'
Why do I want to support MCA? 'The MCA website and research papers have been pivotal in stopping the medical gaslighting and forcing professionals to listen to us.'
How do I feel about what Megan has been through? 'How does anyone feel when the one that you love becomes critically ill? You just feel thankful to have had what time you have had, the times to come and remain hopeful for a cure or medication that works.'
How do I feel about supporting someone with MCAS? 'Any illness gives you perspective; our lives have changed drastically. It is trying, exhausting, testing… the list goes on but it also makes some things momentous. A date night becomes an occasion not a routine, a cinema trip without a reaction becomes a win and you understand that in life it doesn’t matter where you are; it’s the people that matter and you do what you can. You make them hot water bottles at 2am, you carry them up the stairs when they can’t walk and you certainly don’t give up on them.'
You can follow Scott's training programme and marathon journey on Instagram, here.
Check out Scott's Just Giving page and read his and Megan's story, here.
Thank you Scott for supporting Mast Cell Action and helping us to raise vital funds and awareness. We can't wait to cheer you over the finish line! Good luck!!
Please contact Pippa at The Comms Collective with any press inquiries.
The Mast Cell Action Christmas raffle has arrived.
It's finally here!
We have some fabulous prizes on offer - if we do say so ourselves!
Plus you will be supporting Mast Cell Action with every ticket purchased - which will help us to continue supporting those living with mast cell disease ! Check out our resources section and research to see how your donations are being spent!
Get your tickets here
Our very own Helen Bowes daughter, Piper, is undertaking an hour-long run with pooch Rolo to raise funds for Mast Cell Action.
Piper’s mum, Helen, has Mast Cell Activation Syndrome and Piper is raising funds to support people like her!
Piper has hypermobility and struggles with her leg joints, so this run is a big undertaking for her! She hopes to help Mast Cell Action to support those living with MCAS, you can donate to her fundraiser here.
Our charity is entirely dependent on donations, with most of that income being raised in our annual fundraiser. Last year our fundraiser was named Put Your Best Foot Forward, and people took part in sponsored jumps, ascents of the stairs, and bake sales for the campaign
Chris, one of our founding Trustees has completed several walks of varying themes - including one with 28 different dogs in 28 different days!
Joy, our Head of Communications organised a sponsored walk in her local village - attended by all sorts of interesting legs including some inflatable animals!
Gawain and family walked the length of the Thames to raise funds and awareness for MCA.
Lily, aged 11, did 5000 bounces on her trampoline during lockdown. Well done Lily!
Anna and Alfie made 500 cards and sent them to care home residents during lockdown. What a fabulous way to put smiles on 500 faces and support Mast Cell Action at the same time! Thank you both for your support!
The Masons organised a sponsored cycle at their local Co-Op supermarket, collecting £250 of donations from shoppers! Brilliant idea, thank you!
People who partake in activities that raise funds for the charity are doing so at their own risk but whilst doing so, they should consider health and safety risks are mitigated for each fundraiser event and be aware that the charity is not able to take responsibility for any loss or injury resulting from fundraising activities on behalf of Mast Cell Action.
Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives. Please click on Data Protection at the bottom of the page to see our Data Protection Information.
Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference for sufferers of MCAS.