Our stories

Some members of our community have kindly offered to share their stories to support other people living with MCAS. Hearing about the experiences of others can be helpful as we navigate our own journeys. 

We are always happy to hear more stories from our community. If you would like to talk to us about sharing yours, please get in touch.

"Thank you, Thank you, Thank you Mast Cell Action for all the work you do to raise awareness about Mast Cell Activation. The information on the website is so very helpful to share with family and friends and feels like a 'safe space' among all the turmoil this condition brings. I always print off a pile of the PDF symptom infographics and take them with me to every medical appointment I attend. They're a Godsend for busy doctors and nurses - and the response has been so positive. What's more, I recently saw a consultant who was intrigued to hear about my condition. She then mentioned she had similar symptoms and was delighted to take one of the handouts. The receptionist at my local GP practice has also scanned the PDFS into my notes and plans to put one of the posters up in the surgery waiting room to make other people aware of potential triggers. Hooray!" Anonymous, 40-something, Person affected by Mast Cell Activation

A wonderful member of our community has kindly shared their story with us. You can read 'The Maze of Illness' here.

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