Support after an MCAS diagnosis

Receiving an MCAS diagnosis can bring answers, but it can feel overwhelming with lots of things to consider. Our MCAS Post-Diagnosis Support Service offers free, practical support to help you understand your condition, identify what may help you manage day-to-day life and feel more confident moving forward.

The service is available to UK residents with a confirmed diagnosis of MCAS and is delivered remotely.

This service has been made possible with the generous support of The James Tudor Foundation. [Apply for support - LINK]

How can we help?

Living with MCAS can mean making sense of symptoms, triggers, food, energy and the environments around you. It can feel overwhelming for many people affected, so we can work through some of those challenges together. We can help you with identifying triggers, explore practical changes and identify manageable next steps that fit your life. We can help you to prepare for appointments, assess how management is affecting your symptoms and support stabilisation through self-management and diet.

This is a short-term support service designed to help you find practical ways to manage life with MCAS. It does not diagnose MCAS, provide medical treatment, prescribe or change medication, or replace the clinicians responsible for your care.

What happens next?

Apply - Tell us a little about you and what support you are looking for.

We review your application - We’ll consider how the service could best support you.

Your support begins - We’ll contact you about the next steps and arrange your support. We anticipate significant demand for this service, so there may be a waiting list if demand exceeds the number of appointments we are able to offer. If this is the case, we will keep you informed about expected waiting times.

[Apply now - LINK]

Feedback, concerns and complaints

It's important to us to provide a service that people with MCAS feel listened to and supported by. We will collect feedback from each person who uses this service, this feedback will be reviewed to help us make improvements where possible. 

If something has not gone as expected, please contact us. Raising a concern will not affect your access to Mast Cell Action support.

If you would like to make a formal complaint, please email us or read our Complaints Policy for information about what happens next.

Help us support more people after diagnosis

A diagnosis can be the start of a new set of questions and worries.

Your donation can help us provide practical, trusted support to people learning how to manage life with MCAS - from understanding triggers and adapting their environment to accessing specialist support.

Help us reach more people when they need us most.

Make a regular or one off donation if you are able to so that nobody has to face MCAS alone.