Shannon's Story

Shannon recently fundraised for Mast Cell Action by hosting a table selling books, MCAS badges, pens and Christmas cards. Shannon's original goal was £80, but thanks to incredible generosity and support, she raised an amazing £130!

What have you done/are you doing to raise funds for Mast Cell Action?

I set up a table with books and mast cell activation syndrome badges, pens, bags, Christmas cards

What is your link to Mast Cell Activation Syndrome? 

I have been diagnosed with Mast Cell Activation Syndrome. I had been struggling with symptoms for over 3 years, that eventually got worse and led to me having seizures and no quality of life. I couldn’t look after my children and I had to stop work and be cared for 24 7. I couldn't get support from healthcare professionals and many didn’t believe that their was anything wrong with me and that it was all in my head. 

I did everything I could to fight for my health and I came across information about MCAS. It made so much sense to me, everything fitted. I did a lot of research, got new doctors and finally managed to be seen and listened too.

I am now managing my symptoms with medication, avoiding triggers, reducing high histamine foods and I am doing all I can to try heal my body.

What did you enjoy most/are you enjoying about your fundraising experience?

Listening to other people’s stories and raising awareness, not just for myself but for others, too.

What would you say to other people considering doing a fundraiser for Mast Cell Action?

Doing a fundraiser gives so much joy and you feel proud

What message would you like to share with the MCAS community?

You're not alone. Fight for your health.