We are urgently looking for people with knowledge and understanding of the medical community, to help us with our communication and advocacy in that area.
If this is you – or you know someone who fits the bill – please do contact Joy directly.
Thank you so much!
Welcome
Have you or someone you know been diagnosed with MCAS, or do you suspect you have MCAS? We are here for you.
We are a UK-based charity supporting people affected by Mast Cell Disease. We are founded and run by people who have MCAS or care for someone with MCAS, so we know exactly how it feels!
We know that finding out you have MCAS or may have MCAS can be scary and you may feel very alone, but we are here for you, with you, for every step of your journey. Knowing that we are not alone because there are other people out there like us is so important and can make a big difference.
If you have any questions, please get in touch. We want to help.
Signs and symptoms
If you think you may have MCAS or are concerned that someone you know may be having symptoms that could be MCAS, check out our information about MCAS or read more about MCAS symptoms.
Remember that MCAS is complex, everyone experiences a unique set of symptoms and no two people are exactly the same. Not everyone with MCAS experiences anaphylaxis and symptoms can change over time.
Remember that other illnesses can cause some of the symptoms of MCAS. The first step is to speak to your GP, sharing information from our Health Professionals area if they are interested in finding out more.
If you have just received an MCAS diagnosis
Receiving a diagnosis or probable diagnosis of MCAS can be frightening and overwhelming, but we are here to help you with managing MCAS and to support you. Understanding which triggers affect your MCAS can help to reduce the frequency and severity of your symptoms.
We know that MCAS is complicated and can be difficult to explain to those around you. Check out our information about MCAS to help break the jargon down and make it easier to understand and explain to others.
You can also take a look at our stories - to hear from others who are living with Mast Cell Activation Syndrome.
Living with MCAS
Life with MCAS can be tough sometimes, but we are here to help! Check out our support and resources for information about services and materials designed to help you. You can also find out about events for the MCAS community such as our virtual weekly Qigong sessions or virtual community zoom meetings.
We know that it can be difficult to look after our well-being when managing physical symptoms. It can also be isolating and upsetting to cope with MCAS symptoms. Our well-being resources have been specially designed to help support people with MCAS.
You can also reach out for support by contacting us, following us on our social media platforms or joining our virtual support groups on Facebook.
There are lots of ways to get involved with Mast Cell Action, through fundraising, volunteering or joining our MCAS Voices group.
However you choose to get involved, every action and every donation makes a big difference.
Thank you!
Postcode Places Trust
We are delighted to have received an award from Postcode Places Trust, a grant-giving charity funded entirely by players of People’s Postcode Lottery. Find out more here The Postcode Places Trust and People Postcode Lottery.
This grant will allow us to develop a pack to provide practical support to people affected by MCAS as well as leaflets to share with medical professionals, explain MCAS to others and a school resource to help parents and carers to communicate with childcare settings. Thank you to the players of Postcode Lottery.
Mast Cell Action is a member of the Genetic Alliance.
Become a friend
Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives.
Donate
Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference to those affected by MCAS.