I found Mast Cell Action through researching my own symptoms and it was the first time I read someone’s story and thought ‘that sounds like me’. I love to write and find it a great way of coping with life. I started posting little comments and poems on the Mast Cell Action Facebook pages. Joy (Head of Communications and Operations) got in touch with me to ask if they would be able to share some of my writing as it helps other people to understand ‘how MCAS feels’. From there, I’ve written various pieces and also developed the ‘MCAS Moments’ campaign where we share moments of everyday life and how different they are when you have MCAS.
I really want people to feel like they have support, that there are others who understand what they’re going through and to try and ‘give a voice to how it feels’ to have this condition so that other people understand.
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