'Long Covid triggered our MCAS, but doctors didn't believe us'

A growing number of people who have secondary illnesses thought to be triggered by long Covid - including an immune disorder called mast cell activation syndrome (MCAS) - say this feeling is especially acute.

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What Do ADHD, Long Covid And Ehler’s Danlos Have In Common? Meet The Mast Cell.

Nancy Doyle, Forbes

This article covers an overview of what MCAS is, how it is disabling and how to get help.

 Dr Afrin, Mast Cell specialist, describes the MCAS profile:

“MCAS often presents insidiously, slowly worsening over time, with general themes of chronic multisystem inflammation with or without allergic-type problems; there may also be poor healing or other abnormal growth or development in various tissues and organs. The chronic nature of the disease is often punctuated, too, by acute “flares” or “spells” of various symptoms.”

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What to know about mast cell activation syndrome

Medically reviewed by Megan Soliman, MD — By Rachel Ann Tee-Melegrito, Medical News Today

This article will discuss MCAS’s causes, risk factors, symptoms, and diagnosis.

It will also explore how MCAS differs from mastocytosis, some treatments and remedies, and tips for managing MCAS at home.

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Mast Cell Activation Syndrome (MCAS)

This article covers what Mast Cell Activation Syndrome is and diagnosis. 

Diagnosis of MCAS can be a challenge because the mast cell mediators (chemicals released by the cells) may only be elevated during an episode and then return to normal levels.  

While some people with symptoms of MCAS have a raised serum tryptase level, a number of people with a similar set of symptoms may have it elevated only during a flare of symptoms with it returning to baseline, or it may not be elevated at all.

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Mast cell activation disorder

This page links to two videos: 

Living with mast cell activation disorder. 
An overview of mast cell activation disorder, a dysfunction of the immune system.

Mast cell/histamine disorders and EDS
Mast cell activation disorder and other histamine disorders in EDS.

Diagnosis of Mast Cell Activation Syndrome

Dr Deering, Syncope

This artcile covers how doctors may diagnose Mast Cell Activation Syndrome, along with which tests are likely to be required. 

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You can also watch a video of Dr Deering discussing Mast Cell Activation Syndrome with Samia Qadar of The ByPath here.

What is mast cell activation syndrome?

This article covers things such as common symptoms, causes, diagnosis and diet advice. 

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My Journey to a Mast Cell Activation Diagnosis

This article is written by Karina, a founding member of Mast Cell Action. It covers her road to a Mast Cell Activation Syndrome diagnosis. 

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How can a dietitian help support those with Mast Cell Activation Syndrome?

Chloe Hall, BSc MSc

Dietitian Chloe Hall looks at Mast Cell Activation Syndrome (MCAS), how it can be treated and how a dietitian can help. 

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What is Mast Cell Activation Syndrome (MCAS)?

Gerogina Hardy

This article covers topics such as Low-Histamine diet and Low-FODMAP diet. 

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Mast Cell Activation Syndrome (MCAS)

Dr Tina Peers

“Whilst I am not an immunologist, I have been able to help many patients to start to understand their symptoms and reduce their histamine levels to improve the quality of their lives."

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MCAS Diet | Mast-Cell Activation Syndrome

This artcile covers items such as how to calm mast cells naturally, which foods and medications to avoid and which to consider.

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