Our stories

Our stories hope to illustrate the varied routes to MCAS diagnosis and highlight its wide-ranging impact on personal, family, and social lives.

We are currently working on collecting and updating our shared stories and look forward to sharing these with you very soon. Thank you to everyone who has contributed your stories to date. If you have not already done so, and would like to share your story please do get in touch.

Could you share your story?

Patient stories help us to demonstrate the difficulties that are faced by those living with MCAS.

We can ensure you remain anonymous if you prefer and you will have the opportunity to approve the final draft before it is shared.

Please get in touch to share your story. 

Become a friend

Sign up to become a Friend of Mast Cell Action so we can keep you up to date on our progress and on how to get involved in our latest campaigns and initiatives. Please click on Data Protection at the bottom of the page to see our Data Protection Information.

Become a friend


Mast Cell Action relies entirely on the generosity of people like you. Please make a donation now and together we can make a difference for sufferers of MCAS.

Make a donation