Wellbeing resources for carers

Boom and bust cycle theory for Kids

In the world of chronic illness, it's normal to have good and not-so-good days. But if you do too much on the good days, you can end up needing extra rest on the not-so-good days. It's like a seesaw that goes up and down.

Progressive muscle relaxation

When we feel worried or are in 'fight, flight or freeze' mode, our muscles can become tight without us even realising it. To help ourselves feel calmer, we can try focusing on each group of muscles in our body.

Meditation by Deborah Bircham with music shanti by Annie Brunson

A short mindfulness practice for those feeling illness or discomfort

Mast cells and the mind

A PDF to support our session on mast cells and the mind by Deborah Bircham

My Feel better plan

When we are feeling worried or scared it can be tricky to find a way to feel better about the things that are bothering us. Download and complete this plan which you can follow when those worries feel overwhelming.

The Spoon Theory

People with chronic illnesses like MCAS often have limited energy. In the spoon theory, by Christine Miserandino, this is represented as having 12 spoons per day. This can help to explain the impact of some everyday tasks on those living with chronic illness.

The puzzle of you

In the same way that a jigsaw is made up of lots of different pieces, each of us are madeup of lots of different parts too. This puzzle can help you to talk about MCAS being just one part of that puzzle.

Your wellbeing bucket

An exercise to help children identify the things which make them feel good, those which don't and what helps them to feel better when things aren't going so well.

Ball of wool game

The ball of worries activity introduces children to a practical coping strategy to make thoughts and worries appear more manageable.

Parent support leaflet

Parent support leaflet

A leaflet designed to help support parents and carers of children living with systemic mast cell activation and MCAS. It provides suggestions for how to care for your personal wellbeing whilst caring for someone with MCAS, and shares ideas and suggestions for how to communicate and support each other as a family.

An exercise to help you find your feel good activities

Feel good jar

An exercise to help you find the activities that make you feel good and may help to improve your mood. Suitable for children and adults.

A downloadable worksheet to assess personal stress levels for adults

Perceived stress scale - Adults

This worksheet helps you to estimate your personal stress levels and gives you an idea of your current wellbeing.

Children's mood check in sheet - printable

Mood check-in sheet - children

This is a quick and easy resource designed to help you, and those that care about you, to check-in with how you are doing.

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